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This "links" service on the NeuroEducation website aims to highlight websites that provide the latest information on many different neurological problems. The sites are useful to many groups of people, but are particularly helpful to people with a neurological condition and their families. We aim to list the most reputable and reliable sources in the UK. Please read our disclaimer before using any of the links.
We also list telephone and email contact points where relevant. Please remember that the size of the charities varies enormously. Some will have many staff answering enquiries daily and others will have no paid staff and it may take them longer to reply to emails and telephone messages.
Links are provided for information and convenience only. We cannot accept responsibility for the sites linked to, or the information found there. A link does not imply an endorsement of a site; likewise, not linking to a particular site does not imply lack of endorsement.
A.D.D.E.R. (Action for Dystonia, Diagnosis, Education and Research) Tel. 01901 4139500 | www.dystonia.co.uk |
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Association for Spina Bifida and Hydrocephalus Tel. 01733 555988 | www.asbah.org.uk |
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Ataxia UK Tel. 0207 582 91444 | Helpline. 0845 6440606 |
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Ataxia-Telangiectasia Society Tel. 01582 760733 | www.atsociety.org.uk | atcharity@aol.com |
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BASIC (Brain and Spinal Injury Charity) Tel. 0161 707 6441 | www.basiccharity.org.uk | Enquiries@basiccharity.org.uk |
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Brain and Spine Foundation Tel. 020 7793 5900 | Brain and Spine Helpline. 0808 808 1000 |
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Child Brain Injury Trust Tel. 01865 552467 | Helpline. 0845 6014939 | www.cbituk.org | info@cbituk.org |
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CMT (Charcot Marie Tooth) United Kingdom Tel. 0870 7744 314 | www.cmt.org.uk | secretary@cmt.org.uk |
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Different Strokes Tel. 01908 313 501 | www.differentstrokes.co.uk | info@differentstrokes.co.uk |
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Down’s Syndrome Tel. 0845 230 0372 | www.downs-syndrome.org.uk | info@downs-syndrome.org.uk |
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Dystonia Society Tel. 0845 458 6211 | www.dystonia.org.uk | info@dystonia.org.uk |
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Encephalitis Society Tel. 01653 692583 | www.encephalitis.info | mail@encephalitis.info |
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Epilepsy Action Helpline number. 0808 800 5050 | Phone. 0113 210 8800 |
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Guillian-Barre Tel. 01529 304615 | www.gbs.org.uk/index2.shtml | admin@gbs.org.uk |
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Headway - The Brain Injury Association Tel. 0207 841 0240 | www.headway.org.uk | enquiries@headway.org.uk |
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Huntington's Disease Association Tel. 020 7022 1950 | www.hda.org.uk | info@hda.org.uk |
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Meningitis Trust 24 hour [nurse-led] Helpline. 0845 6000 800 |
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Neurosupport (formerly Mersey Neurological Trust) Tel. 0151 298 2333 | www.neurosupport.org.uk |
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The Migraine Trust Tel. 020 7436 1336 | www.migrainetrust.org | info@migrainetrust.org |
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Motor Neurone Disease Association Tel. 01604 250505 | www.mndassociation.org | info@mndassociation.org |
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Multiple Sclerosis Society Tel. 020 8438 0700 | www.mssociety.org.uk | info@mssociety.org.uk |
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Multiple Sclerosis Trust Tel. 01462 476700 | www.mstrust.org.uk | info@mstrust.org.uk |
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Muscular Dystrophy Campaign Tel. 0207 720 8055 | www.muscular-dystrophy.org |
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Myasthenia Gravis Association Tel. 01332 290219 | www.mgauk.org |
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Narcolepsy Association UK Tel. 0845 4500 394 | www.narcolepsy.org.uk | info@narcolepsy.org.uk |
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National Autistic Society Tel. 020 7833 2299 | www.nas.org.uk | nas@nas.org.uk |
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National ME Centre Tel. 01708 378050 | www.nmec.org.uk | nmecent@aol.com |
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National Society for Epilepsy Tel. 01494 601300 | www.epilepsynse.org.uk | info@epilepsynse.org.uk |
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National Tremor Foundation Tel. 01708 386399 | www.tremor.org.uk | tremorfoundation@aol.com |
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The Neurofibromatosis Association Tel. 020 8439 1200 | www.nfauk.org | info@nfauk.org |
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Pain Concern Tel. 01620 822572 | www.painconcern.org.uk | info@painconcern.org.uk |
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Parkinson’s Disease Society Tel. 0207 9318080 | www.parkinsons.org.uk | info@parkinsons.org.uk |
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The PSP Association Tel. 01327 860299 | www.pspeur.org | psp@pspeur.org |
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Rett Syndrome Association UK Tel. 0870 770 3266 | www.rettsyndrome.org.uk | info@rettsyndrome.org.uk |
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SCOPE (Cerebral palsy) Tel. 0808 800 33 33 | www.scope.org.uk | response@scope.org.uk |
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Speakability Tel. 020 7261 9572 | www.speakability.org.uk | speakability@speakability.org.uk |
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Stroke Association Tel. 020 7490 2686 | www.stroke.org.uk | info@stroke.org.uk |
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SUDEP (Epilepsy Bereaved) Tel. 01235 772 850 | Bereavement contact line. 01235 772782 |
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Tourette Syndrome (UK) Association Tel. 0845 4581252 | www.tsa.org.uk | admin@tsa.org.uk |
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Transverse Myelitis Society Tel. 020 8568 0350 | www.myelitis.org.uk |
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Trigeminal Neuralgia Tel. 0208 462 9122 | www.tna-uk.org.uk |
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Tuberous Sclerosis Association Tel. 05602 420809 | www.tuberous-sclerosis.org |
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UK Acquired Brain Injury Forum (UKABIF) Tel. 020 87804500 | www.ukabif.org.uk | ukabif@rhn.org.uk |
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